Scleroderma face changes1/31/2024 ![]() A positive outlook can help you better manage scleroderma. Your emotional and mental health can affect how you feel physically and how you manage your scleroderma. Stress can make your scleroderma symptoms get worse. The problem with trying to manage all of these feelings on your own is that it places additional stress on your body. ![]() So instead, you keep all of your feelings inside tightly hidden, trying to cope by yourself. You may be worried that you will burden them with all your emotions. Often, you may struggle to tell your concerns to family and friends. You may feel scared, alone, and frightened that your future has so many unknowns. How do I keep feeling good about myself with these changes?.What do I say to someone who says, “You look great, you have no wrinkles.What do I say to someone who has not seen me in a while, now that I look so different?.How long can I hide the changes that are taking place from my co-workers?.Will my physical limitations prohibit me from being an active parent?.Will the changes in my body make dating more difficult?.Will I still be able to be intimate and enjoy a healthy sexual life?.How will scleroderma change my appearance?.Our accessories are the attitudes, beliefs, and behaviors we’ve embraced to help us manage our illnesses and live the lives we choose.” When you notice your appearance changing, you may have certain questions, such as: Instead of just accepting or reacting negatively to our ugly dresses of scleroderma and lupus, we decided to consciously and carefully choose accessories. We wanted healthy, happy, and productive lives in spite of our illnesses. “Karen and I did not want our illnesses to define us or to dictate the quality of our lives. I might have to wear the ugly dress, but I do not have to be the ugly dress.”Ĭo-author Linda McNamara who has lupus says: Guidance, Inspiration and Hope for Women with Lupus, Scleroderma and Other Autoimmune Illnesses”. Karen Kemper, is a person with scleroderma and co- author of the book “If You Have to Wear an Ugly Dress, Learn to Accessorize. For others, these changes may more profound. For some patients, these changes are mild and occur slowly over time. Physical changes seen with scleroderma are often perceived to be undesirable and unattractive and can be very distressing. These changes affect one’s body image and sense of self. Scleroderma often involves changes to one’s outward physical appearance.
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